I put this website together
to spread information about what we went through with our son, Gabe,
in dealing with craniosynostosis. There are so many resources out
there available -- I just wish I would've known about them before Gabe
had his surgery. What I know now can benefit so many people.
For some costs may be a big part of getting a child surgery or letting
him/her grow up with an abnormality.
we would like to inform parents of the surgical aspect, what
preoperative tests will be performed, where to have these tests locally
(Idaho), blood donation, what to take to the hospital during the
hospital stay and the extent of hospital stay.
PCC - Parents of Children with Craniosynostosis,
4928 Freedom Ave.,
(208)238-1979 or firstname.lastname@example.org